Self-Reported Breast Cancer Characteristics

SSS senior research analyst Aimee D’Aloisio was first author, and SSS health researchers M. Elizabeth Hodgson and Sandra Deming-Halverson were coauthors, of an article in BMC Cancer that describes the results of an analysis to determine how well self-reported breast cancer characteristics correspond with what is found in medical records. Based on data from participants in the Sister Study, researchers found that while participants accurately reported overall breast cancer and common subtypes, they had greater difficulty distinguishing between in situ and invasive breast cancer and less common subtypes. The study authors theorized that discrepancies may be due to misunderstanding information conveyed by health care providers or inconsistent terminology used to describe subtypes. Coauthors included researchers from the University of North Carolina Chapel Hill and the National Institute of Environmental Health Sciences.

Read more about SSS research activities in our online publication SSS Update.